| Description: | We conducted a mixed-methods, multisite, community-based participatory research study to optimize recruitment of families for a genetic study. To develop a community-based partnership, we collaborated with the National Witness Project to recruit African-American women diagnosed with breast cancer and their unaffected relatives. We also used focus groups to investigate incentives and factors related to participation in a family-based genetic study in this minority group. The aims are: (1) work with the National Witness Project members to develop a process to optimize recruitment and participation by African-American women; and (2) identify new regions of the genome that may increase breast cancer risk in African-American families. The initial study is complete; we have submitted additional grants that would enable continued research activities. We engaged with women locally in Buffalo, but also included other U.S. cities. |
| Project/Activity Leader(s): | Heather Ochs-Balcom, Assistant Professor |
| Unit: | School of Public Health and Health Professions |
| Department: | Epidemiology and Environmental Health |
| City: | Buffalo |
| State: | NY |
| Country: | United States |
| External Funding: | Yes |
| Funding Source: | Susan G. Komen |
| Start Date: | 2009-05-20 |
| End Date: | 2013-05-19 |
| External Partners: | National Witness Project; Buffalo/Niagara Witness Project |
| Are UB students involved? | Yes |
