Review of the epidemiology program of the American Cancer Society (ACS) — review of overall research goals and also the work of individuals doing research for the national ACS. Worked with Susan Gapstur at the Atlanta ACS.
We conducted a mixed-methods, multisite, community-based participatory research study to optimize recruitment of families for a genetic study. To develop a community-based partnership, we collaborated with the National Witness Project to recruit African-American women diagnosed with breast cancer and their unaffected relatives. We also used focus groups to investigate incentives and factors related to participation in a family-based genetic study in this minority group. The aims are: (1) work with the National Witness Project members to develop a process to optimize recruitment and participation by African-American women; and (2) identify new regions of the genome that may increase breast cancer risk in African-American families. The initial study is complete; we have submitted additional grants that would enable continued research activities. We engaged with women locally in Buffalo, but also included other U.S. cities.